Your CLL companion
Welcome to CLL Navigator
Living with Chronic Lymphocytic Leukemia (CLL) comes with many questions. CLL Navigator is a digital community ecosystem, built in collaboration with people in the CLL community, that gives you the tools you need to take the next step.
We’re just getting started as we build this digital community together.
Models used for illustrative purposes
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Everyone’s path with CLL is different. Choose what fits you best and we’ll point you to the right place.
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Everything you can find here
Learning tools, financial help, and well-being resources for people with CLL and their caregivers.
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Master the Basics
Get Clear Facts about Chronic Lymphocytic Leukemia (CLL)
A CLL diagnosis can raise many questions. That’s why CLL Navigator is here to help provide clear facts about your diagnosis so that you can be empowered to make decisions about your treatment options.
Key takeaways
- CLL is a chronic, slow-growing blood cancer affecting a type of white blood cell (a B cell).
- About 21,000 people per year are diagnosed in the US; the median age at diagnosis is 70.
- There is no cure, but CLL is treatable — many people can have a normal lifespan and a good quality of life.
- Some people begin with “active observation” (watch and wait) before any treatment starts.
Please remember that questions about your specific diagnosis are best directed to your doctor. For tips on what to ask your doctor, please visit our Treatment Over the Long Term section.
What is CLL?
CLL is a chronic, slow-growing blood cancer caused by the overproduction of a certain kind of white blood cell (a B lymphocyte, or a B cell).
Over time, abnormal B cells accumulate in the blood, bone marrow, and other organs. Because abnormal (malignant) B cells live longer than normal (healthy) B cells due to acquired mutations, the abnormal B cells eventually crowd out the normal B cells.
CLL is a rare cancer: about 21,000 people per year in the United States are diagnosed with CLL.
The exact cause of CLL is unknown, but some risk factors include:
- Age: CLL is more common in older adults. The median age of diagnosis is 70.
- Race: CLL is most common among people who are white, followed by people who are black.
- Sex: CLL is nearly twice as common in men than in women.
CLL is not believed to be hereditary (passed from one generation to the next).
Symptoms vary from person to person depending on how the disease develops, but many people with CLL may not have any symptoms at all.
You may have:
- Swollen glands
- Repeated infections or difficulty shaking off an infection
- Extreme tiredness, or fatigue. One of the causes of fatigue is anemia, which is caused by not having enough red blood cells
- Bleeding or bruising easily
- Enlarged spleen, which may cause pain or a feeling of fullness
- Night sweats
Because many people with CLL may not have any symptoms, CLL is often diagnosed during a routine blood test, in which a high count of lymphocytes (a type of white blood cell) is detected.
To confirm that the high lymphocyte count is due to CLL, your doctor will order an additional blood or bone marrow test called flow cytometry. A CLL diagnosis is confirmed if the flow cytometry detects at least 5,000 of the same kind of lymphocyte.
In some cases, you may need a biopsy of lymph nodes or bone marrow to confirm a CLL diagnosis.
This testing will assess your risk level and will be used to inform your treatment plan.
Biomarker Testing
Doctors use special tests to detect CLL biomarkers that help guide CLL treatment choices. Biomarker testing may include looking for changes in chromosomes (long strands of genes), including: 17p deletion, 13q deletion, 11q deletion, and trisomy 12, and the TP53 gene (located on chromosome 17) and IGHV genes.
There is no cure for CLL, but it is a treatable condition. There are available treatments that your doctor may prescribe, and there are even more potential treatments currently being researched. These options may make it possible to keep the disease under control for long periods of time. Many people with CLL can have a normal lifespan and a good quality of life.
What treatment you need – or whether you need treatment at all – depends on your age, your lab tests, and current health condition. Because CLL grows slowly, some people may never need any treatment. Other people may need treatment to reduce the signs and symptoms of CLL.
Your doctor may recommend what is called “active observation” or “watch and wait” after your diagnosis. This means that treatment doesn’t start right away. Instead, your CLL is monitored with visits and tests. Watching and waiting is not the same as doing nothing; there is a clear plan to act if tests show that the CLL is changing.
When it is time to start treatment, it is important to know that CLL has more than one treatment choice. Each treatment works in different ways, and each has its own pros and cons: how it has been studied, what side effects it may cause, how and how often the treatment is given, and how long you stay on it.
Ask your doctor which option might be the best fit for you, based on your overall health, daily activities, and expectations for long-term control of your CLL.
Targeted Therapy Options
The most common type of CLL treatment is called “targeted therapies,” which block certain proteins – such as BTK (Bruton tyrosine kinase), BCL-2 (B-cell lymphoma 2), CD20 (B-lymphocyte antigen CD20), or PI3K (Phosphoinositide 3-kinase) – involved with cancer growth.
For people with CLL who are newly diagnosed the most common treatments may include BTK inhibitors alone or in combination with a BCL-2 inhibitor and/or an anti-CD20 treatment.
In most cases, chemoimmunotherapy is not recommended for patients anymore.
Depending on your lab results, some treatments may be more appropriate than others.
Continuous Therapy
Taken at home by mouth with a daily routine continuously until you or your doctor stops treatment.
Fixed Duration Treatments
Fixed duration treatments are taken for a set period of time and then stopped.
- Fixed duration treatments may require several visits during the beginning of treatment, regular trips to the clinic for infusions, and potential hospitalization for observation of high-risk patients, which is usually defined by having a large number of lymphocytes or large lymph nodes.
- For a guide on how to speak with your doctor about this, see here.
Other less common treatment options may include chemotherapy, other targeted therapies, cellular therapy (such as CAR-T therapy), or a stem cell transplant.
Clinical Trials
In some cases, you and your doctor may decide that you may be a good candidate for a clinical trial (a research study to evaluate the safety and efficacy of a potential new medicine).
Please visit Clinical Trials FAQs to learn more.
Whether you can take a break from fixed duration treatment is a conversation you will need to have with your doctor. If you are on a fixed duration therapy your doctor may want to test you for “measurable residual disease” (MRD), which refers to detecting a small number of cancer cells that may remain in your body after treatment, even when in remission. If your MRD is not detectable, your doctor may agree to pause your treatment.
It is very important to consult with your doctor before taking a break from treatment to ensure that taking a break will not cause your disease to progress. Always discuss with your care team if you are having trouble taking your medication.
How to Think About Different Treatment Options Over the Long Term
Because people with CLL may live with their disease for many years, it is important to understand how different treatment options can affect your health and your chances of living longer over the long run.
⏱ 5 min read
All CLL treatments are different, so it is important to ask your doctor about the key differences among available treatments.
Ask your doctor
1. How long has each treatment been studied for? 6+ years? Longer?
2. How is the treatment taken? By mouth? By IV? At home? In a doctor’s office?
3. How often do I take the treatment? Once a day? Twice a day? Less often?
4. Which treatments have strong long-term survival data?
5. What percentage of patients were alive on each treatment at 6+ years?
6. For each treatment, what is the average time that patients do well without their illness getting worse?
7. For each treatment, do the side effects get better, worse, or stay the same over time?
8. For each treatment, how are they monitored for safety?
9. Which treatments give me the best chance of staying on treatment without major complications?
Doctor Conversation Guides
Talking with your doctor about CLL can feel overwhelming, and it’s not always easy to know what to ask. We created some printable conversation guides to take with you. Choose the one that is right for you.
Conversation Guides to Take to Your CLL Doctor Visit
CLL Clinical Trials FAQs
This section is designed to help you better understand the purpose of CLL clinical trials, how they are designed, what they seek to study, and what some important clinical trials terms mean. This information can be used with your care team to make a decision together about whether a clinical trial could be right for you.
⏱ 8 min read
What is a clinical trial?
Start here to understand what a clinical trial is, the role of health authorities, and the phases a cancer trial moves through.
What is a Clinical Trial?
CLL clinical trials evaluate the safety and effectiveness of potential new treatments for CLL.
Health authorities, such as the Food and Drug Administration (FDA), use the data from clinical trials to determine whether these new CLL treatments should be available outside of clinical trials.
How are Clinical Trials Planned?
Clinical trials follow a research plan, called a protocol, that determines who is eligible to participate in the trial, which treatments are being studied, how participants will be cared for during the trial, and what research questions the trial seeks to answer.
Normally, clinical trials for cancer treatments, like those for CLL, are planned in phases:
Phase 1 focuses on how safe a new treatment is in the human body, including how to dose the treatment.
Phase 2 focuses on how safe a new treatment is against a certain type of cancer, such as CLL. Phase 1 and 2 may be combined (Phase 1 / 2).
Phase 3 focuses on how effective and safe a new treatment for a certain type of cancer is, like CLL, compared to an existing treatment.
Phase 4 continues to study how effective and safe a treatment is over the long term, after it has been approved by FDA.
Taking part in a trial
Practical answers about eligibility, placebos, and cost — questions to talk through with your care team.
How Can I Participate in a Clinical Trial?
Participation in a clinical trial should start with a conversation with your doctor about the potential risks and benefits. Your doctor will be able to help you determine if you may be a good candidate for a certain clinical trial. Some of the considerations may include your age, health status, and treatment history.
Often, the doctors and care team who run a clinical trial will be different from your everyday CLL doctor, but they will stay in communication about your care.
If you are eligible for a clinical trial and decide to participate, you will need to sign a document called “informed consent” that acknowledges that you understand what to expect in the clinical trial, including the risks and benefits.
Will I Get a Placebo?
It is very rare for cancer trials to use a placebo (an inactive version of a treatment). If you have questions about whether a clinical trial involves a placebo, it is best to ask your doctor.
Instead, cancer trials will often test a new treatment option against a “comparator,” which is the treatment that is used as a standard.
If you are considering participation in a clinical trial, be sure to discuss with your doctor what the comparator is to ensure that you are comfortable with receiving that treatment as an option.
Do I Have to Pay to Participate in a Clinical Trial?
You do not have to pay to enroll in a clinical trial or to receive clinical trial treatments. Discuss with your clinical trial team whether there is financial assistance for non-treatment-related costs, such as transportation or lodging.
Common terms, explained
Clinical trials use specific terminology to explain how the trial will work. Some key terms to know include:
This means that patients are placed into different treatment groups by chance, like flipping a coin. This is done to make sure the groups are similar and that the results are fair.
This means that researchers observe and measure outcomes in participants who are receiving standard treatment without intervention. Researchers or doctors could be providing the standard treatment, which is being observed.
Refers to a clinical trial in which researchers actively provide a treatment, or intervention, to the participants.
This refers to the most used or accepted treatment(s) for a specific disease. The standard of care is usually what potential new treatments are studied against in a clinical trial.
This is a group of patients in a clinical trial that does not receive the new treatment. The control group may receive either a placebo, the standard of care, or no treatment depending on the study design. The control group serves as the baseline against which the effects of the new treatment are compared.
In a blinded study, either the patients, the doctors, or both do not know who is receiving the new treatment and who is receiving the control. This helps prevent bias, as knowing what kind of treatment someone is getting could influence their experience or reporting.
In an open-label study, everyone knows what treatment the patients are receiving (both the patients and the doctors).
Do you have more questions about clinical trials? Please find answers here: BeOne Clinical Trials | US
How trial results are measured
Endpoints are the specific outcomes researchers use to evaluate how well a treatment works and how well patients tolerate it.
What Do CLL Clinical Trials Seek to Measure?
A clinical trial endpoint is a specific outcome used to evaluate the effectiveness of a treatment.
In CLL clinical trials, endpoints usually measure how well the CLL patient is responding to treatment.
Because CLL is a chronic (slow-growing) disease, it is important to understand the long-term effects of treatments on patient survival and safety.
This is commonly reflected in:
which measures the time during and after treatment that a patient lives without the disease getting worse (progressing)
which measures the time from the start of treatment until a patient dies from any cause
Both PFS and OS data can be reported at many time points, so it is critical to understand which treatments have and have not reported favorable long-term results (typically measured at 5+ years after starting treatment).
In some cases, short-term survival data does not correlate with long term survival data.
What are Some Important CLL Clinical Trial Endpoints?
Additional Endpoints that Measure How Well the Treatment Fights Cancer (Efficacy Endpoints)
Reflects the percentage of patients whose cancer shrinks or disappears after treatment. It combines different responses such as complete response (CR) and partial response (PR).
- Complete Response (CR) – this means that all signs of cancer have disappeared after treatment.
- Partial Response (PR) – this means that the cancer has shrunk but is still present after treatment.
Measures how long a patient maintains a response (CR or PR) after the treatment starts before the cancer starts to grow again. It indicates how long the benefits of the treatment last.
Measures the time from the start of treatment until the cancer starts to worsen or progress.
Endpoints that Measure How Well Patients Tolerate the Treatment (Safety Endpoints)
Any undesirable experiences or medical conditions that occur during the trial. These can be mild to severe and can provide insight into the safety of the treatment.
A subset of adverse events that are severe enough to result in significant health issues, hospitalization, or death.
The percentage of patients who must stop the treatment due to safety issues or side effects.
The percentage of patients who must reduce treatment due to safety issues or side effects.
Be sure to consult your doctor when interpreting clinical trial results, or find resources here.
CLL Research
Researchers are hard at work looking for the next wave of investigational treatments in CLL.
⏱ 2 min read
BeOne is committed to research in CLL. To see what we’re studying in CLL, please view our pipeline.
Our Pipeline →BeOne is actively investigating treatments for CLL. To see our list of clinical trials in CLL, please visit our clinical trial site.
CLL Clinical Trials →
Financial Support for Your CLL Journey
Covering the costs of CLL treatment may feel overwhelming. This section is meant to help you learn the basics about types of costs you may encounter on your journey and some possible ways to alleviate those costs.
Understanding Types of Costs
The costs you may encounter on your journey can be both medical and non-medical. What you ultimately pay will vary, based on factors that are unique to your situation.
Medical Costs
- Doctor and healthcare team appointments
- CLL medications: The type(s) and length of your treatment can impact costs
- Lab and imaging tests and diagnostic procedures
- Other medications recommended from your care team
- Insurance coverage: Your insurance coverage can impact how much you may need to pay directly
Non-Medical Costs
- Transportation, travel, and lodging
- Lifestyle and living expenses
- At-home supportive care
Understanding How Much Your Care Will Cost
Your insurance company can answer questions about your plan and its benefits, including how much your care is expected to cost.
Many insurance companies can answer questions via phone call, email, and even online chat. Insurance company contact information is found on the back of your insurance card, or online.
Getting Help to Pay for Your Care
There are several kinds of organizations that can help you pay for CLL treatments.
Some people with CLL may be eligible for support from MyBeOneSupport. Find out more here
Copay assistance programs are designed to help patients cover out-of-pocket costs associated with prescription medications. These programs can be sponsored by pharmaceutical companies, nonprofit organizations, or foundations.
How They Work: Eligible patients may receive a grant or financial support to reduce their copayment for specific medications. This assistance can lower the amount a patient pays for treatment.
Eligibility: Typically, patients need to provide information about their income, insurance coverage, and the medications they require to qualify for assistance.
Patient Assistance Programs (PAPs) are initiatives created by pharmaceutical companies to provide free or low-cost medications to individuals who are uninsured or underinsured.
How They Work: Patients can apply to receive medications at no cost or a significantly reduced price. The program may require documentation of financial need.
Eligibility: Patients usually need to meet specific income guidelines and demonstrate a lack of prescription drug coverage. Each program has its own criteria, so it’s vital to check with the specific PAP for details.
Numerous nonprofit organizations and foundations offer financial support for the cost of medications and treatment. These organizations often focus on specific diseases or conditions, providing targeted resources.
How They Work: Patients can apply for grants or financial aid that can help cover medication costs, transportation for treatment, and other related expenses.
Eligibility: Many foundations have specific eligibility criteria based on income, diagnosis, and other factors. It’s essential to review each foundation’s guidelines to determine if you qualify.
Some pharmaceutical companies offer programs that provide medications at no cost to eligible patients. These programs may be referred to as “free drug” programs.
How They Work: Patients may apply to receive their medications for free. This is particularly beneficial for those who cannot afford the full price of their prescriptions.
Eligibility: Patients must demonstrate financial need to qualify for a free drug program, often by showing proof of income and/or insurance.
Many pharmaceutical companies and pharmacies offer discount cards or coupons that can be used to reduce the cost of medications.
How They Work: Patients can present these cards or coupons at their pharmacy to receive a discount on their prescription costs.
Eligibility: Generally, there are no strict eligibility requirements, and anyone can utilize these savings tools, though they may have expiration dates or be limited to certain medications.
Ask your care team about additional support
Your care team may include people whose role is to help you navigate the cost and logistics of treatment.
Check if your care team has a financial counselor…
Financial counselors help patients and caregivers navigate the often complex burden of cancer treatment. These counselors typically understand insurance plans, what support drug manufacturers might offer, and more.
…or a nurse navigator
Nurse navigators guide patients and caregivers along the cancer journey by coordinating care, providing education, helping with treatment adherence, connecting patients to resources, and being a consistent point of contact.
Reach out immediately to your doctor if you’re having trouble following your treatment plan, or avoiding appointments because of the stress associated with affordability or out-of-pocket costs.
Mental & Emotional Well-Being for People Living with CLL
This page provides general information and resources to help you understand and navigate the emotional side of CLL. It does not replace medical or mental health advice and care. If you are experiencing significant emotional distress, please speak with a qualified professional.
Feelings of worry, sadness, loneliness, stress, or uncertainty can be common and normal.
Understanding your emotions
What you may feel living with CLL, and when it can help to reach out for professional support.
You may experience:
- Shock or confusion at your CLL diagnosis, especially during the "active observation" period
- Anxiety about testing, CLL progression, or possible future treatment
- Feeling low or sad due to uncertainty and lifestyle changes
- Fatigue or difficulty sleeping
- Stress about work, family roles, or daily functioning
- Loneliness, even with strong support networks
These reactions are normal and do not mean that you are coping poorly.
Caregivers may also feel overwhelmed, worried, exhausted, or unsure how best to help. Please see our mental health resources for CLL caregivers.
Seeking professional help is a sign of strength. Consider asking your doctor for a referral if you:
- Feel persistently overwhelmed or hopeless
- Experience panic attacks
- Have difficulty completing daily activities
- Notice changes in appetite, sleep, or concentration
- Are using alcohol or substances as a coping tool
- Have a history of anxiety, depression, or trauma
- Find yourself withdrawing from activities or relationships
Cancer-experienced psychologists, counselors, social workers, or psychiatrists can offer meaningful support.
Ways to cope
Small, everyday practices that many people with CLL find supportive.
Mental & Emotional Well-Being for CLL Patients
Connecting with others can help you feel understood and less alone. You may find support through:
- Short breaks throughout the day
- Light physical activity, such as walking or stretching (if appropriate for you)
- Mindfulness or breathing exercises
- Healthy sleep routines
- Creative outlets, such as journaling, music, or art
- Setting boundaries—it is okay to say "I need a few minutes"
Daily Practices that May Help
- Light movement (walking, stretching) if appropriate
- Mindfulness, breathing exercises, or meditation
- Keeping a simple journal
- Setting limits on how often you check lab results or online forums
- Establishing regular sleep routines
- Enjoying activities such as music, art, reading, or being outdoors
Get support now
If you need help right away, or want to connect with a community resource.
Crisis Support
Contact emergency services immediately if you or someone you care for:
- Talks about self-harm or suicide
- Has a plan or intent to hurt themselves
- Expresses that they no longer want to live
Talk About It elevates and amplifies the underserved intersection of cancer care and mental health to help improve outcomes for cancer patients. Through a flagship website and unique patient and provider-focused tools and resources, Talk About It empowers those impacted by cancer to address the mental health needs associated with a cancer diagnosis and engage in important conversations to drive change and advance equitable access to care for all.
BeOne's Talk About It: Cancer and Mental Health →Resources
Below are examples of organizations that provide general educational and emotional support for people with CLL or other blood cancers. These groups are independent of this website.
Blood Cancer United provides free information and support services, funds lifesaving blood cancer research worldwide, and is the voice for all blood cancer patients seeking access to quality, affordable, coordinated care.
Blood Cancer United
CSC is a global nonprofit network with over 200 locations in 50 markets, including CSC and Gilda's Club centers as well as healthcare partnerships. These locations, along with a toll-free helpline (CSC-867-5309), digital services, and award-winning education materials, provide more than $50 million in free support services to patients and families each year.
Cancer Support Community
CLL Society is the world's leading authority for chronic lymphocytic leukemia and small lymphocytic lymphoma cancer patients. We are devoted to serving our community through CLL and SLL education, support, advocacy and research.
CLL Society
Crossroads4Hope is working to ensure that, beyond medicine, everyone affected by cancer has access to the supportive cancer care they deserve. Toward this aim, at no charge, we provide people of all ages diagnosed with cancer, caregivers and families with support, information, resources, and professionals essential to living through and beyond cancer with strength and hope, so that no one faces cancer alone.
Crossroads4HopeMany national cancer nonprofits provide mental health guidance, caregiver support, and navigation help. Talk with your healthcare team about local and online options.
Medical Disclaimer:
This information is for educational purposes only and does not replace professional medical advice. Always speak with your healthcare provider regarding your specific situation.
Medical Health Disclaimer:
If you are experiencing significant emotional distress, please seek support from a qualified mental health professional.
Organizational Disclaimer:
Mentions of support organizations are for general informational purposes. This page does not endorse these organizations or their services.
Mental & Emotional Well-Being for CLL Caregivers
The caregiver role is more than tasks—it includes the emotional labor of being a steady source of support.
Caring for Someone Living With CLL
Supporting someone with chronic lymphocytic leukemia (CLL) is an act of love, commitment, and resilience.
At the same time, caregiving can bring emotional, physical, and practical challenges. Many caregivers describe moments of uncertainty, exhaustion, or worry—often while trying to stay strong for the person they care for.
This page offers general information to help caregivers understand what they may experience and how to access support for themselves. It does not replace medical or mental health advice.
Understanding your emotions
What caregivers often feel, the role you carry, and how to build support around yourself.
Caregivers may experience:
- Worry or fear about the future
- Stress and responsibility overload while balancing work, home, and caregiving
- Guilt for feeling tired, frustrated, or needing a break
- Emotional fatigue or burnout, especially during periods of monitoring or frequent appointments
- Loneliness or isolation, even with strong networks
- Role changes, such as shifting responsibilities in the household or family
Caregivers often help with:
- Attending medical appointments or taking notes
- Tracking symptoms or changes
- Coordinating schedules, transportation, or daily tasks
- Supporting emotional needs
- Navigating insurance or financial concerns
But the caregiver role is more than tasks—it includes the emotional labor of being a steady source of support during an unpredictable journey.
Recognizing the impact of this role is an important step toward maintaining your own well-being.
- Clear, compassionate communication helps both you and the person you care for. Asking questions and listening carefully can be helpful.
- "I want to support you, but I'm also feeling overwhelmed. Can we talk about how to make this easier together?"
- "How are you really feeling today?"
- "Would you like me to go with you to your next appointment?"
- "Is there anything you want me to ask the doctor on your behalf?"
- It's okay to also express your needs. Open communication can strengthen trust and reduce misunderstandings.
Caregivers benefit from having their own sources of support. Potential support options include:
- Cancer or caregiver-specific support groups
- Online communities for caregivers
- Counseling or therapy, especially with someone experienced in chronic illness
- Trusted friends or family who can offer emotional or practical help
- Spiritual or Community groups, if meaningful to you
Studies show talking with others in similar situations helps when you are feeling overwhelmed and prevents feelings of isolation.
Small practices can make a meaningful difference:
- Short breaks throughout the day
- Light physical activity, such as walking or stretching (if appropriate for you)
- Mindfulness or breathing exercises
- Healthy sleep routines
- Creative outlets, such as journaling, music, or art
- Setting boundaries—it is okay to say "I need a few minutes"
Ways to cope
Looking after yourself helps you keep showing up for your loved one.
Daily Practices to Maintain Caregiver Well-Being
Taking care of yourself is not selfish. It helps you continue supporting your loved one effectively.
Professional Mental & Emotional Well-Being Support
Consider reaching out to your healthcare provider or a mental health professional if you:
- Feel persistently anxious, sad, or emotionally numb
- Are having difficulty completing daily tasks
- Feel overwhelmed or exhausted most days
- Experience changes in sleep, energy, or appetite
- Feel resentful, helpless, or disconnected
- Are using substances to cope
- Worry that you may "break down" or cannot sustain your caregiving role
Supportive counseling for caregivers can improve emotional health, communication, and resilience.
Caregiver Self Care
These are some things to think about. It's important to take care of yourself during your caregiving journey.
Think about who you can reach out to when you need it
- Family/friends
- Healthcare team
- Local caregiver resources
Think about what you can do for yourself
- Physical activity
- Breaks/rest
- Emotional outlets
- Support group participation
Get support now
If you need help right away, or want to connect with a community resource.
Crisis Support
Contact emergency services immediately if you or someone you care for:
- Talks about self-harm or suicide
- Has a plan or intent to hurt themselve
- Expresses that they no longer want to live
Talk About It elevates and amplifies the underserved intersection of cancer care and mental health to help improve outcomes for cancer patients. Through a flagship website and unique patient and provider-focused tools and resources, Talk About It empowers those impacted by cancer to address the mental health needs associated with a cancer diagnosis and engage in important conversations to drive change and advance equitable access to care for all.
BeOne's Talk About It: Cancer and Mental Health →Resources
These organizations provide general emotional and practical support for caregivers. They are not affiliated with this website.
Blood Cancer United provides free information and support services, funds lifesaving blood cancer research worldwide, and is the voice for all blood cancer patients seeking access to quality, affordable, coordinated care.
Blood Cancer UnitedCSC is a global nonprofit network with over 200 locations in 50 markets, including CSC and Gilda's Club centers as well as healthcare partnerships. These locations, along with a toll-free helpline (CSC-867-5309), digital services, and award-winning education materials, provide more than $50 million in free support services to patients and families each year.
Cancer Support CommunityCLL Society is the world's leading authority for chronic lymphocytic leukemia and small lymphocytic lymphoma cancer patients. We are devoted to serving our community through CLL and SLL education, support, advocacy and research.
CLL SocietyCrossroads4Hope is working to ensure that, beyond medicine, everyone affected by cancer has access to the supportive cancer care they deserve. Toward this aim, at no charge, we provide people of all ages diagnosed with cancer, caregivers and families with support, information, resources, and professionals essential to living through and beyond cancer with strength and hope, so that no one faces cancer alone.
Crossroads4HopeA number of general cancer organizations offer caregiver guidance, communication tools, and practical support
Medical Disclaimer:
This information is for educational purposes only and does not replace professional medical advice. Always speak with your healthcare provider regarding your specific situation.
Medical Health Disclaimer:
If you are experiencing significant emotional distress, please seek support from a qualified mental health professional.
Organizational Disclaimer:
Mentions of support organizations are for general informational purposes. This page does not endorse these organizations or their services.
Doctor Locator
Whether you are navigating a CLL diagnosis, choosing a CLL treatment, or figuring out your next step, it is critical to find a CLL doctor you can trust.
Find a CLL Doctor
The sites below can help you search for the criteria that are important to you – such as location, insurance, or specialization – to ensure that your CLL care meets your needs.
CLL Society is the world's leading authority for chronic lymphocytic leukemia and small lymphocytic lymphoma cancer patients. We are devoted to serving our community through CLL and SLL education, support, advocacy and research.
Visit →
HealthTree is a global nonprofit using innovation to save lives. Our cutting-edge technology unites patients and researchers to help people with blood cancers live better and longer and leads the search for a cure. We provide lifetime personalized support and education, meaningful patient-to-patient connections, and a powerful patient data portal, allowing patients to be active contributors to research that drives lifesaving breakthroughs.
Visit →
Inclusion of a physician on this directory does not constitute a referral, endorsement, recommendation, or verification of the physician’s credentials, qualifications or medical skills by BeOne. This directory is not an exhaustive list of all physicians in a location, and may not include all physicians who may be able to help you. You are ultimately responsible for the selection of your healthcare providers. This is an important decision, and you should consult with your insurance provider and healthcare team, and carefully consider any other valid information available to you in selecting a physician.
CLL Glossary
Learn definitions for CLL terms here.
Stories from the CLL Community
Living with a CLL diagnosis can feel isolating, but you are not alone. Hear stories of hope and resilience from people living with CLL and their loved ones.
Keep going
Build your understanding. Prepare for your next conversation.
Learn the fundamentals of CLL or get ready for meaningful discussions with your doctor using our Conversation Guides.
Articles
Perspectives and practical guidance from the CLL community.
Keep going
Build your understanding. Prepare for your next conversation.
Learn the fundamentals of CLL or get ready for meaningful discussions with your doctor using our Conversation Guides.
Community Suggestion Box
This Suggestion Box is a place where you will have an opportunity to vote for and add topics of interest you would like to see added to the CLL Navigator site. To suggest a new topic, please fill out the form at the bottom of the page.
Click the arrow to vote for a topic (tap the arrow next to the topic of choice; you can vote once per topic).
| Post | Upvotes | Posted |
|---|---|---|
| Nutrition tips & recipes for people living with CLL | 19 | 2 months ago |
| Tips on how to talk to loved ones about your diagnosis | 10 | |
| How to read clinical trial data (graphs and charts) | 7 | |
| How to use AI to navigate a CLL diagnosis | 6 | |
| Information on different testing options for CLL | 6 | |
| How to use AI to navigate a CLL treatment decision | 6 |
CLL Suggestion Box
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Learn the fundamentals of CLL or get ready for meaningful discussions with your doctor using our Conversation Guides.
Connect with Others Across Platforms
We've curated a list of external communities where meaningful conversations are already happening. Explore these spaces to connect, learn, and engage beyond our platform.
External communities
Explore where coversations are happening across the CLL & SLL Community.
RedditIn the past week, 3 new posts were shared in the Chronic Lymphocytic Leukemia (CLL) Reddit Community.
FacebookRecently, 407 new posts were added in the CLL Support Group Facebook private group.
In the past month, patients shared 91 posts in the CLL Survivors & Thrivers Facebook group.
Recently, 4 new posts were added in the SLL – Small Lymphocytic Lymphoma Facebook private group.
YouTube
InstagramIn the past week, over 24 Reels were viewed and shared on Instagram related to CLL.
In the past week, over 21 Reels were viewed and shared on Instagram related to SLL.
X (Twitter)In the last 7 days, 57 posts using #CLL were shared on X.
In the last 7 days, 2 posts using #SLL were shared on X.
Support Communities
CLL Society
CLL Society is the world's leading authority for chronic lymphocytic leukemia and small lymphocytic lymphoma cancer patients. We are devoted to serving our community through CLL and SLL education, support, advocacy and research.
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Blood Cancer United
Blood Cancer United provides free information and support services, funds lifesaving blood cancer research worldwide, and is the voice for all blood cancer patients seeking access to quality, affordable, coordinated care.
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HealthTree Foundation
HealthTree is a global nonprofit using innovation to save lives. Our cutting-edge technology unites patients and researchers to help people with blood cancers live better and longer and leads the search for a cure. We provide lifetime personalized support and education, meaningful patient-to-patient connections, and a powerful patient data portal, allowing patients to be active contributors to research that drives lifesaving breakthroughs.
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Crossroads4Hope
Crossroads4Hope is working to ensure that, beyond medicine, everyone affected by cancer has access to the supportive cancer care they deserve. Toward this aim, at no charge, we provide people of all ages diagnosed with cancer, caregivers and families with support, information, resources, and professionals essential to living through and beyond cancer with strength and hope, so that no one faces cancer alone.
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Lymphoma Resource Foundation
The Lymphoma Research Foundation is the nation's largest nonprofit dedicated exclusively to lymphoma. We provide trusted information, expert-led educational resources, and community support to people affected by Hodgkin lymphoma, non-Hodgkin lymphoma, and chronic lymphocytic leukemia.
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